Visually challenged boy pens novel

Viswanath Venkat Dasari. Photo: S. RambabuInspired by author J.K. Rowling’s Harry Potter series, a visually challenged 18-year-old from a farmer’s family in Gokavaram of East Godavari district, has spent seven years of his life writing Pharaoh and the King, a story based on Indian and Egyptian mythology.

Viswanath Venkat Dasari, a second year student of the Rajiv Gandhi University of Knowledge Technologies, Nuziveedu, suffers from Nystagmus and Photophobia — his eyes cannot focus clearly on any object for more than a second.

INSPIRED

Ever since Ms. Rowling’s 5 edition of Harry Potter and the Order of the Phoenix hit the stores, Venkat began to weave a tale around the mythological stories he had heard during his childhood from his mother Satya, father Radhakrishna and grandfather, J. Harinath Babu.

As Telugu had been his medium of instruction, he took the help of his English teacher, K.V. Buchibapanna, and others, for proof-reading and corrections. He initially wrote by hand, and later, started using MAGIc, a screen-enlargement software, given to him by the L.V. Prasad Eye Institute in Hyderabad, and began keying the story of Pharoah and the King.

MULTIPLE THEMES

The 276-page book, set in the backdrop of Delhi, London, Cairo and Giza, tells the story of a man who saves the world from evil. It takes the reader back in time to an ancient civilisation full of mystery, adventure, menace, righteousness, the supernatural and occult culture. The story revolves around a mystical being, Vivékadeva, who is set up against a villain who robs ancient treasures from around the world and wants to misuse Cosmic energy drawn from the Pyramids.

VICTORIOUS HERO

The hero has been an atheist ever since he lost his beloved ones. But his experiences take him on the path of self-realisation. The bad guy tries to deceive the hero, giving him the hope that he can find his beloved ones if he will help him in his quest for spiritual riches. But, with the help of a younger brother, the villain is defied and Vivékadeva saves the world.

Venkat took help from his younger sister, Sija, in writing the script.

The book was published by AuthorHouse, U.K. Priced at $19.95, the book was released in the United States and the United Kingdom.

The Hindu

Online library opened to address shortage of Braille books

On the occasion of Louie Braille’s 203rd birthday, also known as World Braille Day, a special function was organised by the National Institute of the Visually Handicapped (NIVH) and Xavier’s Research Centre for the Visually Challenged (XRCVC) at the Ali Yaver Jung National Institute for the Hearing Handicapped in Bandra Reclamation.

A major initiative designed to boost the education of the visually challenged, in the form of the Online Braille Library was launched. Union minister for social justice and empowerment, Mukul Wasnik was the chief guest.

K Ramkrishna, general secretary of the National Association for the Blind, said, “There are 2,82,800 visually challenged people seeking education in the country. Out of that, only about 29,000 get a regular supply of Braille books,” he said. He added that even though India has a Braille printing capacity of 13 crore pages annually, only about 2 crore Braille pages get printed every year.

The reason for this disparity, said Ramkrishna, was the extra cost of printing in Braille. “Because of the extra pages, special paper and cost of editing a page in Braille is six and a half times more expensive to print than a normal page.”

After this sobering perspective, the website was formally launched. Dipendra Manocha, director of the NGO Sakham, spent some time going through the various features of the website which would alleviate some of the problems outlined by Ramkrishna. The website would grow to have 12,000 books in 13 different languages.

Wasnik said that his own ministry had made its website accessible to the visually challenged and that the finance ministry had followed suit. “I’ve asked all other ministries to do the same, but it will take some time,” he said.

 DNA Published Date:  Jan 05, 2012

Post Script:

The link for Online Braille Library National Institute for the Visually Handicapped  (Under Ministry of Social Justice and Empowerment, Govt. of India is http://www.oblindia.org/en/login

ATM devised for sightless customers

Bella Jaisinghani TNN

Mumbai: A group of organizations working to make the city disabled-friendly would have made Louis Braille proud on his birth anniversary Wednesday. Having devised a range of software programmes and gadgets that could be used by visually handicapped people, they unveiled the collection at a special function in Bandra, held to mark his birthday. Among them was an automatic teller machine (ATM) that blind people can use to withdraw money.

“We inaugurated an online Braille library that allows students to download files and print them to read. There is a full display of access technology like low-vision aids and teaching aids,” said Sam Taraporevala, head of sociology at the Xavier’s Resource Centre for the Visually Challenged (XRCVC). The institute partnered the National Association of Visually Handicapped (NIVH), Dehradun, in this exhibition.

NCR Corporation, which manufactures ATMs, demonstrated a machine that can be used by sightless customers. “It is a regular ATM fitted with auto-guidance software,” said Nagesh Nayak, professional services practice manager of NCR. “One can use a regular headphone and plug it into the jack to receive instructions and operate the numeric keypad on the machine.” Operative buttons like ‘Enter’ and ‘Cancel’ are embossed and codified.

It would help to have Braille stickers affixed to the numeric keypad, though Nayak says that just about 10% sightless people read the script. “The raised dot on the number 5, which is a feature of most keypads, comes in handy to detect the rest of the numbers. People who go blind later in life are scarcely familiar with Braille, it is mostly the young who read it,” he said. As for security, should a sighted person catch a glimpse of the screen while a visually-challeged person is operating the machine, all he would see is a blank screen.

Unfortunately, banks have been slow to take to this technology primarily for the initial investment it would entail. “However, the Reserve Bank of India has issued guidelines to say that one-third of all the new ATMs must be accessible to the blind,” says Taraporevala.

Times Of India

Sound Sense

It was not easy for 25-year-old Garima Goyal to get three post-graduate degrees. But the coursework, deadlines and submissions were not the deterrent. The biggest challenge she faced was the lack of easy access to the prescribed texts in a format she could study after she started to lose her sight at 15. “Most of my books were not available in audio formats due to copyright issues,” she reveals. “Moreover, college notes are often hand-written or photo-copied. So often, I had to get someone to type them out in a legible format,” she adds.

The investment in her education was immense. Books, notes and prescribed texts had to be scanned before putting them through a software that would convert them into audio. While many visually-impaired students like Goyal have struggled over the years to keep pace with their sighted classmates, the launch of an online library dedicated to higher education might make things easier.

On January 4, the birthday of Louis Braille, who invented the six-dot language for the blind, the National Institute for the Visually Handicapped (NIVH) will launch the Online Braille Library at the Ali Yawar Jung Institute for the Hearing Handicapped in Bandra. With over 12,000 titles in 14 different languages, it is dedicated to help visually-impaired post-graduate students with prescribed texts from numerous colleges across India without any charge. By offering reading formats in Braille as well as audio, the library will cater to students in subjects ranging from mathematics and IT to history and literature.

“We launched the initiative on this very day in 2009,” smiles Anuradha Mohit, director of NIVH. “It took close to 18 months to convert all the texts into a Unicode font, which can be read in Braille as well as audio.” The Online Braille Library will thus be a resource that allows students to read in Braille using an add-on computer equipment called Refreshable Braille Display, and in audio using voice software such as JAWS.

Mohit, who is visually-challenged herself, explains the focus on texts for post-graduate studies. “A book in any language becomes twice as large when it is translated into Braille. The logistical complications and the time involved often discourages them from pursuing degrees in higher education,” she reveals. “Storing them becomes a problem for individuals and university libraries,” she adds.

NIVH will begin the programme by training the staff and visually-impaired students from over 100 universities and libraries to use the portal. The users can enroll through the local libraries that are affiliated with NIVH.

The online texts for the educated blind isn’t the library’s only unique selling point. Their section titled ‘Common Catalogue’ will have access to all the books — reference, study, fiction and children’s books — available with Braille publishers and libraries across the country. “This will make it easier for both students and parents to locate the required book and approach the right publisher for a copy,” says Mohit. “We want to make sure that every visually-impaired person in India has the opportunity to access Braille literature,” she adds.

According to Sushmeetha B Bubna, the founder-director of Voice Vision, an organisation that trains visually-impaired people to work on computers, this initiative will help people in cities as well as rural areas. “People in cities may have their smartphones and laptop software to read, but Braille is very important to people in rural areas. This initiative will help not just the visually-impaired, but also the hearing-impaired,” she says.

Service dogs are beyond fetching

Their use is growing. They help guide the blind, perform tasks for the physically disabled and may even help people with epilepsy and autism.

One moment 15-year-old Glen Gregos was a happy-go-lucky kid riding a motorcycle. The next he was the lucky-to-be-alive victim of a terrible accident, paralyzed from the chest down.  Now 54 and a resident of Woodland Hills, Gregos has built a rewarding life — LA Service Dog Piccollege, marriage, a successful banking career, a daughter who just graduated from college.  Still, for decades after the accident, Gregos faced challenges every day from simple things most of us take for granted — going to the grocery store, going out the front door. And then six years ago, his life took another dramatic turn. He met Beulah — a.k.a. Miss Bo — a black Labrador retriever who has been at his side, 24/7, ever since — to open doors, carry bags, pull his wheelchair, pick up anything he drops on the floor and cheer up any black mood he falls into.

"It’s hard to put into words everything these dogs do for you," he says. "It’s physical. It’s emotional. It’s all-encompassing. You probably have to live it to understand it."  Miss Bo is not considered a pet. She’s a service dog, a concept first introduced with guide (or seeing-eye) dogs for the blind, perhaps as far back as the 16th century, though it wasn’t until 1929 that the first guide dog training school in the U.S. opened up. By the 1970s, people had started training dogs to help with other disabilities, and that trend has continued.  Service dogs now include dogs that can open cupboards and drawers, alert someone to a ringing telephone, assist someone during a disorienting seizure, help someone keep their balance or get back up after a fall, not to mention dogs that can sniff allergens in the air or low blood sugar on someone’s breath.

"Here in the U.S. we have a highly individualistic culture — creative, experimental," says Lynette Hart, director of the Centre for Animals in Society at UC Davis. "It’s like a caldron for coming up with new things that dogs can do for us. And dogs love to work. It’s a very natural marriage for them to help people."  This has been a boon for many who, like Gregos, have had their lives changed by some extraordinary dogs. But potential pitfalls abound. "There’s almost no regulation," Hart says. "And everyone wants to do what they want to do."  Sometimes people want to call their dogs service dogs even though they’re really not. And sometimes people want to believe dogs can do things even though there’s no real proof they can.

Many dogs have a natural knack for providing comfort, companionship and emotional support to their people, who often consider that a pretty big service. But it doesn’t make those dogs service dogs. Neither does a capacity for warding off crime by looking or sounding formidable. According to the 1990 Americans With Disabilities Act and new regulations put in place in March, a service dog must be trained to perform a service for a person with a disability that is directly related to the person’s disability — turning lights on and off for someone who’s paralyzed, for example, or alerting someone who’s deaf that a smoke alarm is blaring.  Many organizations train one or more kinds of service dogs, and in general their programs follow a pattern set by the early guide dog training organizations: careful breeding followed by puppy-raising by volunteers who begin the basics of obedience and socialization, and finally intensive training by professionals. (Potential human recipients also are carefully screened, trained and matched to dogs.)

Guide Dogs for the Blind, the first guide dog training school on the West Coast, relies solely on Labrador retrievers, golden retrievers and crosses of the two. Training organizations for other types of service dogs often do too. "They have wonderful temperaments," says Katie Malatino, public relations coordinator for one such organization, Canine Companions for Independence, headquartered in Santa Rosa. "They’re a good size for the tasks they have to do, and they have an instinct to retrieve, which comes in handy for picking things up off the floor."  Canine Companions for Independence provided Miss Bo to Gregos in November 2005. These days she is always on call if Gregos needs her, which is not to say that she never has any fun. "She has toys," he says. "We play ball. But once she gets vested up" — wearing the vest that identifies her as a service dog — "she knows, ‘OK, I’m ready to work.’ " (And people who see the vest should should know and respect that too.)

Like any good service dog, when she’s working, Miss Bo is unperturbed by loud or unexpected noises ("bomb proof," Malatino calls it) and undistracted by other animals or people — unless Gregos gives her special dispensation. Which he often does.  "I put her in a ‘sit’ and let people pet her," he says. "I want to create more awareness about these special dogs. I wasn’t aware of them myself for a long time. I’d think, ‘What can a dog do for a guy in a wheelchair?’ "  The Americans With Disabilities Act says service dogs get to go wherever their people go: grocery stores, restaurants, libraries, amusement parks, boats, buses, trains, planes and no-pets-allowed hotels. New regulations issued this spring establish two exceptions (which would surely never apply to Miss Bo): Service dogs can be banished if they get out of control or if they transact certain business indoors that should have been seen to outside.

Not everyone knows the rules. Gregos once spent several hours convincing officials at a hotel with a no-pets policy that they were obligated to let Miss Bo in. "One side of me thought, ‘I don’t want to stay here anyway,’" he says. "But the other part thought, ‘They’ve got to be educated.’ "  Even beyond the issue of ignorance, service dog use is not without controversy. One problem is cheaters.  "A lot of people try to skirt the system," Gregos says. "I see it all the time." Some will claim that their pet dogs are service dogs that help them with disabilities they don’t really have — and they can get away with that, because the law doesn’t require people to present proof of their own disability or their dog’s capacity to deal with it. (It doesn’t help that service dog vests are readily available online.) Proprietors may deny entrance to dogs that arouse their scepticism, and that’s fine if they’re right. If they’re wrong, it can lead to a fine of a very different kind.

Another problem is that there are no industry-wide standards for trainers or dogs, leaving disabled people on their own to determine how much they should trust an organization’s claims. "Guide Dogs for the Blind — they’re very reputable," says Dr. Melissa Bain, chief of the Behaviour Service at the UC Davis Veterinary Medical Teaching Hospital. "If they graduate a dog, OK, I trust it." But not every organization has the same long history of success.  Of course, some claims are easier to validate than others. It’s easy to see if a dog can pull a wheelchair or open a refrigerator door. But seizure prediction? "The trouble," Bain adds, "is if people rely on the dog and nothing else, that could be dangerous."  Sometimes the question isn’t whether a particular dog can perform a task but whether some tasks are even canine-ly possible. Take seizure detection again. "Is that legitimate?" Bain says. "Maybe."

In 1999, a British epilepsy specialist and a behavioural scientist/animal trainer reported that by giving dogs a reward every time their owners had seizures, they had been able to train some dogs to warn of oncoming seizures as much as 15 to 45 minutes before the seizures occurred. Their paper in the journal Seizure inspired a demand for such dogs.  Today, the Epilepsy Foundation says on its website, "while some people have been very pleased with their new canine friends, others have been disappointed." The foundation "recommends that people take great care in reviewing trainer claims and results, especially when thousands of dollars are involved."  More questions arose in 2007 when four of the seven seizure-alert dogs in a study in the journal Neurology were found to be warning people of psychological, not epileptic, seizures. Psychological seizures, caused by mental stress, can often be eliminated through counselling — without drugs — making warnings beside the point. And in one case in that study, a dog’s "warning behaviours" were found to set the seizures off.

Service dogs for children with autism have inspired a debate all their own, with some districts reluctant to allow the dogs into their schools because, they argue, the dogs cause too much trouble — other children may be scared or allergic; child and dog may require extra supervision.  But, in fact, the value of service dogs to children with autism is less controversial than it is for seizures. "One of the main things our dogs do is provide safety," says Kati Rule-Witco, executive director and placement specialist for Autism Service Dogs of America, a training organization founded in 2002 that’s based in Lake Oswego, Ore. "Often children with autism will run off. Parents have trouble just going to the grocery store. Our dogs provide a way for families to go out safely."  A 2008 study in the journal Qualitative Health Research looked at what happened when service dogs were brought into 10 families with children with autism and found that they did, indeed, enhance safety and facilitate public outings. When the child and dog go out into the community together, the dog is tethered to the child but also connected to the adult caregiver since that’s who holds the dog’s leash. Autism service dogs are also trained to keep their cool no matter what their young charges do (hug, squeeze, lie on top of the dog) and to take positive steps to cope with negative behaviour (nudge or lean against the child, maybe even stop the child from hurting himself).

All of this costs money, a lot of it. That’s true for training any service dog. Some organizations — like Guide Dogs for the Blind and Canine Companions — can operate on donations alone. But not all. Autism Service Dogs of America says the average cost for breeding, raising, training and placing one of their dogs is $20,000, $13,500 of which families are required to pay before they are placed on the waiting list for the next available dog.  The website for Autism Service Dogs of America has testimonials from 10 satisfied families who use words like "awesome" and "miracle" to describe their dogs and the jobs they do. They firmly believe that their money was well spent. But not everyone is convinced.

Bain notes that research so far has not compared service dogs to ordinary family dogs, and she suggests the latter might do just about as well. "Maybe a child feels better sitting next to the dog," she says. "There’s no way to tell if special training does any good."  Gregos has no such questions about the good that Miss Bo’s special training has done for him. But she’ll be 8 in August, and the time is coming when she’ll need to retire and he’ll need to get a new service dog. Then Miss Bo will change from service dog to pet dog and spend the rest of her days with the man who says that having her has been "magical since Day One."

By Karen Ravn, Special to the Los Angeles Times

Can and Able : Disability Sports

Wheelchair Race

REMA NAGARAJAN TIMES INSIGHT GROUP

The 2010 Commonwealth Games in Delhi will be an inclusive event, with para sports held along with able-bodied events. But a global debate still rages on whether the lines between abled and disabled should be erased

South African Natalie Du Toit, whose left leg is amputated below the knee, qualified in 2008 for the Beijing Olympics. She became the first athlete with a disability to qualify for the final of an event in the largest ablebodied sporting meet, the Olympics.   Natalie has won over 15 gold medals at various international events for disabled sportspersons and, in the Beijing Olympics, finished in 16th place in the 10,000 metre swim, just over 1.22 minutes behind the winner.   While a few disabled athletes do qualify to compete against the able-bodied in certain sports, the movement globally is not so much for the disabled to compete against the able-bodied as for a merging of para games with able-bodied events.

Recently, Dr Robert Steadward, one of the founders of the International Paralympic Committee (IPC), created a stir when he called for the Paralympic Games to be combined with the Winter Olympics.  Such a merger would mean not only that para games are held along with ablebodied sports, but also that medals won in para games would count in the final tally of a country. Only then, believe the proponents of this move, will disability sports be taken as seriously and disabled sportspeople get as much recognition and funding as able-bodied sportspeople. The Commonwealth Games created history in 2002 by becoming the first fully inclusive international multi-sport games. This meant sporting events for people with disabilities would be held along with able-bodied sports events and have a common medal tally.

But not all persons associated with disability sports are enthusiastic about integrating disability sports with sports for the able-bodied. The debate on whether integration is desirable rages on internationally.  Dr Steadward suggested that the two games could remain separate in terms of athletes and events, but could share resources like housing and transportation. He felt such a move would reflect a new level of acceptance of people with disabilities and bring more visibility to the Paralympics, which generally garner far less media coverage than the Olympics. Dr Steadward and the present-day IPC are in agreement that the Paralympic Games being the second largest sporting event in the world with nearly 4,000 participants makes it logistically impossible for any one city to host them simultaneously with the summer Olympics. That’s why Dr Steadward suggests clubbing them with the winter Games.

However, the IPC does not agree with Dr Steadward’s case for integration. Steffi Klein, who handles media and communications for IPC, explains that the committee believes that “the Paralympic Games and the Paralympics Movement with its mission, vision and values can and should stand on its own, staging a great sport event for elite athletes with a disability”.   Combining medal tallies would not make sense in this case, she added. While admitting there’s much less public interest in the Paralympics than in the Olympics, Klein pointed out that awareness, acceptance of and public interest in the Paralympics Games had grown significantly over the last decade.

The International Olympic Committee too cites “institutional, technical and organisational difficulties” for not merging the two events. “The leaders of sports for those with a disability themselves do not want this integration. They have received the names Olympic and Paralympic — this proves that the IOC considers them as athletes in their own right,” says Emmanuelle Moreau, Head of Media Relations IOC. Moreau adds that IOC does not keep medal tallies and that the practice of media outlets providing medal tallies was independent of the IOC.

It’s been a long journey for the Paralympics from being separate events to ones held in the same city and the same venue as the main Games, though not fully merged. While the two were always held in the same year, since Paralympics 1988 and Winter Paralympics 1992 they have also  taken place at the same venue. And in June 2001, the IOC and IPC signed an agreement securing this practice for the future, which meant that from the 2012 bid process onwards, the host city chosen to host the Olympic Games would be obliged to also host the Paralympics.   Even for the CWG, becoming fully integrated was a huge progress from 1994 when athletes were first included just in exhibition events. And now, integrated games have become the accepted and established policy for the CWG.

The number of disability sport demonstration events at major sporting events is increasing as integration makes inroads on a sport-by-sport basis. While full integration of the Olympics and Paralympics might seem a long way off, more communication and integration between disabled and able-bodied sporting organisations across the world is leading to a steady breaking down of barriers. For instance, in countries like the UK the same bodies now handle able-bodied and disabled sportspersons for their disciplines. This is a big step from the earlier practice of keeping   the two separate.

Runner

SPORT ISN’T DISABLED. ATHLETES ARE ATHLETES FIRST

Richard M Hansen, Canada’s globe-girding wheelchair athlete and Paralympian is one of ccthe strongest advocates for integration. He tells TOI-Crest why segregration has to end

Why do you advocate merging disabled sports with able bodied sports?

Sometimes it is the right thing to do, to create sport opportunities for people with disabilities in segregated games. But it creates a perception that people with disabilities are less than equal. It’s contrary to the universal values of accessibility and inclusiveness. By creating sporting events where all athletes can compete together, we help break down barriers of segregation. I see sport as a mirror of how society views itself, its social values and behaviours. At the heart of an athlete is the desire is to be included and feel part of a sporting environment. We need better opportunities to better serve the athletes. The question we need to ask is — are we encouraging existing attitudes instead of breaking down barriers?

Why do international sports organisations like the IOC and others continue to insist on segregating games?

The IPC and other organisers should be commended for providing a vehicle for athletes with disabilities to express themselves and strive for their hopes and dreams. As an athlete who has benefited from these games, I feel so fortunate that these organisations have been there and that they provided me with the opportunity to be a gold medalist. I think segregation comes from a perspective of convenience and the desire to help people with disabilities participate in all aspects  of life. A separate set of games accomplishes that objective.

What is the biggest hurdle to merging disability sports with able-bodied sports? How can they be overcome?

I think the biggest hurdle is communication between the organisers of the sports for people with disabilities and the mainstream games organisers. Dialogue would lead to a more similar vision and a common bond. Basically, a collaboration as opposed to a segregation or competition.

What is your opinion about the Commonwealth Games where the integration has happened? Are there other major sporting events where successful merging has already happened?

The Commonwealth Games are a wonderful model of integration, the beginning of a merging journey that has taken many decades. It went from a culture of indifference in 1994 to formal acceptance in 2002. I’ve heard from a number of athletes who characterise the Commonwealth Games as the greatest experience in their athletic life. Being able to participate with full medal status and feel fully included is a huge breakthrough. The Commonwealth Games are a democratic organisation and the member nations voted to provide full medal status for all athletes.  It was a grassroots movement that came from all over the world. The Canada Summer and Winter Games are fully inclusive along with various European and World Championships. I think the more opportunities available to the athletes, the better.

Is it logistically possible to merge disability sports with able-bodied sports? Can a regular sporting event successfully handle the various categories that exist in disabled sports?

I think this has been answered in the past. A question for organisers is — can they afford to logistically stage two separate games? Is that the most ideal model? Ask the athletes and answers will emerge. There is no right or wrong model, just a reflection on where we are on our journey.

What do you see as the future of disabled sports? How do you plan to work towards making it happen?

Sports aren’t disabled. The athletes who participate in them are extremely bright, driven, and have exceptional talent and spirit along with a disability. Like a powerful force of water towards the ocean, it makes many pathways until it reaches its goal. Athletes are athletes first and just want true acceptance, to be honoured and appreciated like their peers.

In The Running

  • 1924 The International Silent Games held in Paris for the hearing impaired were the first recorded games for any group of people with disabilities. The Deaflympics are held every four years like the Olympic Games 1948 Dr Ludwig Guttmann founded the Stoke Mandeville Games in England. It was a sports competition for British World War II veterans with spinal cord injuries. From then on, the Stoke Mandeville Games became an annual event
  • 1952 Competitors from the Netherlands joined the competition. It gave birth to the idea of Parallel Olympics (or Paralympics) 1955 The International Olympic Committee (IOC) recognised the International Committee of Sports for the Deaf (ICSD) and the Deaflympics
  • 1960 The International Stoke Mandeville Games were held for the first time in the same country and city as the Summer Olympics (in Rome). For the first time, they were open to all athletes with disabilities from all over the world, not just veterans. This is described as the First Paralympic Games. The International Paralympic Committee (IPC), the governing body of the global Paralympic movement, started organising both Summer and Winter Paralympics every four years like the Olympic Games
  • 1968 The idea of sports for athletes with intellectual disabilities was conceived by the Special Olympics Movement

How families and coteries are ruining disabled sports in India

The disability sports sector in India seems to be in gross disarray with the administration of the sector in the stranglehold of a coterie of people who seem to have no interest in either the disabled or in sports. National disabled sporting federations seem to be run like mom-and-pop outfits with hardly any national character.Yet, not only does the sports ministry seem blind to such obvious  mismanagement, it  seems to be actively funding and perpetuating these outfits shelling out public money in crores every year to these organisations in the name of promoting sports for the disabled.

The rot seems to start right from the apex body of disability sports, the Paralympic Committee of India (PCI). The PCI is headed by the president Ratan Singh whose son Amar Singh is the vice-president.  Amar Singh’s son, Raghavendra Singh is an escort or so-called professional masseuse for disabled sports teams. He is too young with no professional qualification to be a sports masseur. Yet, he gets selected, despite qualified persons in sports medicine with  professional training in sports massage being  available, says a disabled sportsperson on conditions of anonymity. Sportspersons are scared of speaking out against the office bearers who have a vice-like grip over their sporting  careers, a threat they seem to use to good  effect in keeping them from protesting.

When contacted, Ratan Singh admitted to the problem of office bearers signing up as escorts and managers.  “Office bearers accompany teams as they can sort out any problem easily. I can do little about this. But as you can see, my son and I are not signed up for any team. My grandson is there for being a qualified masseuse. I did not make the selection,” said Singh.

Every single office bearer of PCI has listed himself as manager or escort with various teams accompanying them to countries   like the US, Germany, Malaysia, Taiwan, Australia, Spain and so on. KR Shankar Iyer, the treasurer of PCI, is listed as an escort for the athletics and volleyball teams and manager for the wheelchair fencing team. CV Raghunath,
administrator of PCI, is listed as an escort for athletics, volleyball and the powerlifting teams. M Mahadev, the secretary of the PCI, is listed to accompany the athletics and volleyball teams.

The office bearers of national federations for each sport do what is done in PCI, which is to list themselves as escorts and managers or appoint themselves as the coach and take their wives along as escorts. Quite understandably, these so-called coaches, managers and escorts are of little help to the disabled sportspeople when they go abroad as they are allegedly too busy on jaunts and sightseeing with their wives and  friends who accompany them as team escorts.  Each so-called national federation is single-city based, filled with people from the same city and no national representation. For instance, powerlifting is run from Nagpur, swimming from Gwalior and athletics from Bangalore. The PCI, the overarching national body for all disability sports is controlled by a bunch of people in Bangalore.

The selection of sportspersons from all over the country for different sports is decided by small coteries of people of one city and allegations of irregularities in selection are common. It is the sportspersons who suffer the consequences of such mismanagement. Last month, the athletics team that was supposed to be in Germany for an international meet could not go as those responsible did not apply for the visa in time.

Most teams don’t even have basic sports equipment such as the swimming team not have approved swimming costumes or the table tennis team does not have wheelchairs.

Despite these malpractices being pretty obvious in the team lists for each sport submitted by PCI to the ministry as Long Term Development Plan 2010, the sports ministry seems oblivious to it and the allocation to these federations has been rising steadily every year going from about Rs 10 lakh in 2005 to over Rs 5 crore in 2010.

(Source: Long  Term Development Plan 2010 submitted by PCI to sports  ministry)

List of office bearers of various sports

ATHLETICS

  • Raghavendra Singh, escort: Grandson of PCI president, Ratan Singh and son of Amar Singh, PCI vice-president
  • M Mahadev, team manager: Secretary of PCI
  • David Premnath, coach: General secretary of Wheelchair Basketball Federation of India
  • CV Raghunath, escort: Administrator of PCI
  • Diana Joyline D’Souza, escort: Was personal secretary to PCI president
  • KR Shankar, escort: Treasurer of PCI

SWIMMING

  • VK Dabas, coach: Secretary of Paralympic Swimming Federation of India, also runs Paralympic Committee of Madhya Pradesh
  • Saroj Dabas, escort: Wife of VK Dabas
  • Suresh Kalra, escort: President of PSFI
  • Lalit Gupta, escort: Vice-president of PSFI

VOLLEYBALL

  • H Chandrashekar, cpach: Secretary of Volleyball Federation
  • M Mahadev, escort: Secretary of PCI
  • Chandrashekar, escort: Joint secretary of PCI

WHEELCHAIR FENCING

KR Shankar Iyer, manager: Treasurer of PCI

POWERLIFTING

  • Vijay B Munishwar, coach: President of Paralympic Powerlifting Federation and also runs Maharashtra State Paralympic Association
  • Deepali Munishwar, escort: Wife of Munishwar
  • CV Raghunath, escort: Administrator of PCI

TABLE TENNIS

  • R Murali, coach: Secretary of Paralympic TT Federation
  • Gopal Babu, escort: Member of executive committee, PTTFI
  • Shashikala Babu, escort: Wife of Gopal Babu
  • Satyanarayana, manager: President of PTTFI

EU development cooperation; does disability count?

Europe has declared 2010 to be the year against poverty and social exclusion. It is a good occasion to look at the European policy towards a group that knows only too well what poverty and social exclusion mean: people in developing countries living with a disability. Does European development aid reach people like Lila Maya in Nepal, who became blind as a baby and was isolated and mistreated until a local NGO helped her set up her business? Or Ricardo in Mozambique, who never went to school because of his paralyzed legs?

A vicious cycle
Poverty, exclusion and disability are interrelated. Poverty causes disability, because it means that people do not have access to health facilities, information and adequate food that could prevent a simple disease to develop into a disability. With proper treatment, Lila Maya might have not become blind. Disability in its turn causes poverty, because practical problems and social stigma exclude people with a disability from education and work to earn their own living. Ricardo makes a little money by repairing the clothes of his neighbours, but what would his life have looked like, if he had had access to school and a wheel chair?  According to the United Nations 650 million people live with a disability and 80% of those live in developing countries[1]. The European Union is a major player in development cooperation; it provides over half of all official development assistance worldwide[2]. An inclusive development policy of the EU can therefore really make a difference for people with a disability.
Beyond good intentions
In 2009 the EU ratified the United Nations Convention on the Rights of Persons with Disabilities. It is a legally binding convention which stresses the importance of international cooperation and states that countries should ensure that: ‘that international cooperation, including international development programmes, is inclusive of and accessible to persons with disabilities’[3]. This means that, besides and above the good intentions which the EU expresses by announcing a Year against poverty and social exclusion, it has is a legal obligation to ensure that development cooperation reaches people with a disability. The Convention is an important landmark signalling a change in attitude.  In stead of talking about the handicapped who need to be cared for, people with a disability are now recognized as persons who have the right to participate in all aspects of society. Only countries that have ratified the Convention are bound to it. The EU already took this important step, but a number of European countries such as Norway, the Netherlands, Poland and Italy are still missing on the list.
Towards an inclusive European development policy
Europe has shown its commitment to the rights of the Lila Maya’s and Ricardo’s in the world. But to make sure they can
really benefit from European aid, more steps need to be taken.
  • Ratify: More countries should ratify the UN Convention on the Rights of Persons with Disabilities. This will show their real commitment and helps to make sure that we will come from good intentions to realization of rights. The EU should urge those member states that have not done so yet, to ratify the Convention as soon as possible. Together, the European countries can encourage other countries to ratify and of course to implement the  Convention.
  • Plan: The start of implementation is developing a good plan. A quick scan of relevant EU policy documents on disability and development does not give much hope. The Commission Work Programme 2010 refers to disability only once, in an annex and not in relation to development. The General development framework, makes no mention of disability at all. The Guidance Note on Disability and Development, published in 2004 by the European Commission[4] provides a number of useful principles, but apparently these are not put into practice. A good sign is that the Directorate General Development is considering to add disability to the list of ‘cross cutting’ issues. Recognizing disability as a cross cutting theme will help to ensure that attention will be paid to disability in all development activities: ‘mainstreaming’ disability. Already, the EU requires applicants of development grants to explain how the grant will benefit people with a disability. Besides mainstreaming disability in development activities, the EU will need to facilitate disability-specific services and support for disabled persons to empower themselves and to get access to mainstream services.
  • Learn: Developing such a plan is not easy. Implementing it will be even more challenging. Mainstreaming disability is a new concept and there are no studies yet that prove which strategies are successful. A lot can be learned from the experiences regarding gender and development. It is also important to do research regarding disability and development. Lessons should be drawn from good and bad experiences, to improve future  policies.
  • Measure. To know if efforts are effectively reaching people with a disability, it is important to collect data before, during and after interventions. How many people with a disability are living in the project area? Which disabilities do they have and how does this affect their ability to benefit from development efforts? Targets will need to be set on how many people with a disability will be reached by a certain effort. In most cases, the required data will be unavailable. People with a disability are not counted and therefore cannot be accounted for. Starting to collect these data will make them visible. This will require ‘disaggregation’ of data: asking projects to report on how many of the people they are people with a disability, just as they are often required to do regarding women and youth.
  • Involve. Last but certainly not least,  people with a disability should be involved in all the above. ‘Nothing about us without us’ is the adagio of the disability movement.
[1] UN 2006, Some facts about persons with disabilities, http://www.un.org/disabilities/convention/facts.shtml

Published by: Dutch Coalition on Disability and Development (DCDD) -Saskia Bakker

Disability law: Hunger strike called off

After the Centre partially conceded their demands, a group of disabled people on Wednesday called off their hunger strike held to protest against their poor representation on a committee which is drafting a new law to protect their rights.  Javed Abidi, convenor of the Disabled Rights Group, said the strike had been called off after the Centre’s positive response.

A S Narayanan, secretary of the National Association of the Deaf, told The Indian Express through a translator that Gopal Reddy, personal secretary to Social Justice and Empowerment Minister Mukul Wasnik, had confirmed that six more people would be added to the committee, of whom three were disabled. This would bring the total number of disabled people on the committee to six.  Following pressure from various disabled groups, the Social Justice And Empowerment Ministry had formed a committee in April to draft a new legislation, reflecting the UN Convention on the Rights of Persons with Disabilities, to replace the Disability Act, 1995. The first meeting of the committee will be held on Thursday.

Disability activists are looking for three main changes to the Act.

VINAY SITAPATI
Indian Express

What Women Want: The ability debates

DEEPA ALEXANDER

The triumphs and disasters of the differently-abled in India are two ends of the spectrum. Among the 70 million disabled in our country are those who have conquered peaks, won gold at the Paralympics, and raced in Himalayan and desert car rallies. But, millions more struggle to meet daily challenges in a society that tends to portray the disabled  as either heroes or victims with little or no access to their rightful resources. The proposed amendments to the Copyright Act (1957) are seen as restrictive and discriminatory, as the copyright exception, which aims at allowing persons with disability easy access to copyrighted material, applies only to certain types of disability. We spoke to activists who address these issues, not as charity or welfare but as matters of development and dignity.

Change in attitude

National Trust’s programmes work on building capacity, changing patronising attitudes, building trust in the abilities of people with developmental disability and creating an equal playing field. Unfortunately, deeply entrenched attitudes  continue to exclude people with disabilities. Even if an opportunity is given, it is given only once; if a person with  disability fails, incapacity is assumed. But, in the recent case of a young woman with intellectual disability who had been raped in a women’s home, the Supreme Court upheld her right to ‘choose’ to keep her baby, and she has proved to be a competent mother. However, the disapproval of the intelligentsia in the media is an indicator of the social prejudices people with disabilities have to live with.

Implement their rights

Ability Foundation’s thrust is on creating an equitable society. Through our magazine Success & Ability, we spread this message at a time when service to the disabled was seen only at the physical, and not at the emotional level. Persons with disabilities need access to inclusive education, employment and public places. Being ‘accounted’ in the Census 2011 will open up a plethora of possibilities. Accurate data will enable Government intervention at various levels, leading to proactive action. We need ramps for wheelchair users, audio announcements in bus / train stations for the visually-impaired, and video announcements for the hearing-impaired. Floor numbers in Braille for lifts, sign language interpreters in every hospital, police station and court of law, slip-proof flooring in malls, and large-print books in public libraries for those with low vision are the other needs. The implementation of the rights of persons with disabilities as per the United Nations convention and the Persons with Disabilities Act (PWD), in letter and spirit, is also essential.

A development issue

My daughter Tamana was born with cerebral palsy. It pushed me to found an organisation in 1984 to fulfil the dreams of children with special needs and those of their parents. Therapy and counselling for children and their families is essential for optimum adult rehabilitation. Since Independence, the disabled have been categorised along with sections such as women, Scheduled Castes and Scheduled Tribes. While these have had powerful political lobbies, there has been no spokesperson for the disabled. The dichotomies between the Ministries of Education and Social Justice further worsen the exclusion. Most policy-makers look at disability as a welfare, not a development issue. Disability should be jointly addressed by the Ministries of Health, Women and Child Development, HRD, Social Justice and Empowerment. The definition of disability in the PWD Act does not include autism, which leaves out nearly two million autistic persons in India. Admitting disabled children in normal schools is not enough — you need to have professionally trained staff, who are sensitised. I also hope for a different curriculum for special children, even as they are being integrated in the mainstream. Better pay scales will also bring in more jobs in the disability sector.

Public-private partnership

NGO-run establishments provide free schooling for disabled children. The Government has provided legislative intent  through the Inclusive Education Act, which makes it mandatory to include all kinds of impaired children. However,  Government schools that cater to the poor are generally marked by grossly inadequate infrastructure and teaching  aids, so imagine the predicament of the disabled. I would like a public-private partnership for day-care and residential  institutions which provide educational and recreational service on a long-term basis. This needs to be supported by   research institutions which focus on technology, communication and teaching aids. We need to benefit from global  expertise, and customise them to local needs. As Childline’s primary mandate is child protection, I feel that the  Government must compulsorily provide for a child protection policy in any institution that deals with disabled children, as, such children are more vulnerable to abuse.

The copyright angle

The Centre for Internet and Society is associated with the copyright amendment movement for persons with  disabilities, and is one of the founding organisations for the Indian Right to Read campaign. At present, the proposed copyright amendment is detrimental to the disability sector’s needs. The exception extends only to ‘specially designed’ formats such as Braille and sign language, and does not benefit the millions who have cerebral palsy, dyslexia and low vision, and the visually-impaired persons who do not know Braille. Such persons require audio, reading material with large fonts and electronic texts, which are not ‘specially designed’ formats. For conversion to non-specialised formats, the amendment proposes a licensing system, which will permit only organisations working for the benefit of the disabled to undertake conversion and distribution. This will prevent educational institutions, SHGs, other NGOs and print-disabled individuals from undertaking conversion. The licensing system will also require approaching the Copyright Board for each work, which will be extremely time-consuming. The waiting period for obtaining permissions and subsequent conversion will result in students losing academic years, a violation of their right to education. The  proposed amendment violates the Constitutional guarantee of equality under Article 14 since it discriminates between  those visually-impaired persons who know Braille and those print-disabled persons who do not. It is important for the  nation as a whole to take the concern of persons with disabilities as a mainstream concern.

Emotional homecoming: Autistic teen returns home from jail

Posted at: 04/08/2010 5:17 PM | Updated at: 04/08/2010 11:38 PM

By: Linzi Sheldon | WHEC.com

AutisticIt was an emotional homecoming for a mentally disabled teenager Thursday night. He was released from jail after what his mother calls a horrible misunderstanding. “I was really happy to see her,” 19-year-old Jarred Crawford said. “Just, yay!” his mother Jamie Britt said. “He’s home! He’s home where he needs to be.” Crawford says he is just happy to be home with his family. His story triggered an outpouring of support from News 10 NBC viewers.  The teenager is autistic and his mother says he had  a meltdown at Victor High School on Wednesday  after there were four fire alarms. The school’s resource officer says Crawford punched and kicked him. Jarred was sent to jail by a Victor town judge after his mother said she couldn’t post bail. Britt says on Thursday, an employee from the public defender’s office spoke with the local judge who ordered Jarred to jail. She says that’s when the judge agreed that Jarred could be released.

News 10 NBC was there for that reunion at Ontario County jail. Britt said it was overwhelming to be able to hug her son  again and take him home. She says on Wednesday there were four fire alarms at Victor High School. She says some  autistic children are extremely sensitive to sound and other stimuli and when all that happened, he became physically aggressive with the school resource officer.  A judge sent Jarred to jail when Britt couldn’t post bail. Jarred called jail “scary” and says he is glad to be back home. “Happy,” he said. “Very, very happy. I’m at home, I have my dog upstairs, I have my Furbies, I have my mom, I have my sister…I can see them now. I don’t have to talk to them over the phone, I don’t have to see them through glass.”

After hearing that Britt couldn’t afford the bail money, some viewers called News 10 NBC offering to help her pay for it. Britt says she wants to thank them for their generous offers and kindness. She hopes this whole situation makes people more aware of some of the challenges facing autistic children. “Education is the key,” she said, “that’s the only thing that can happen differently. That’s education for the school systems as well as for the Sheriff’s office and the deputies and everybody that’s dealing with children and young adults that have these issues.” Jarred will not be attending school on Friday. He will be back on Monday when he is scheduled to have a meeting with school administrators. Jarred is still charged with disorderly conduct and assaulting an officer but Britt says she hopes to work with the public defender’s office and the judge to have those charges dropped.

For more Rochester, N.Y. news go to our website www.whec.com.

Braille Porn magazine launched for blind People

April 13: A porn magazine has been launched for blind people – with saucy Braille and raised pictures of nudes. The book was designed by
Lisa Murphy and is called ‘Tactile Minds’.

Among the 17 raised images include a naked woman in a 'disco pose',

Among the 17 raised images include a naked woman in a ‘disco pose’, a woman with ‘perfect breasts’ and a ‘male love robot’ It costs £150
and there are 17 images for people to touch including a woman in a disco pose and a man showing his six-pack. Founder Lisa Murphy, from Canada, spent two years putting it together.  Ms Murphy said that she made the book to fill a gap in the market, adding: “There are no
books of tactile pictures of nudes for adults.  “We’re breaking new ground. Playboy has an edition with Braille wording, but there are no pictures.”  She said that she made the book after realising that the “blind have been left out in a culture saturated with sexual images”.  Between 1970 and 1985 Playboy printed copies of its famous magazine in braille – but without raised pictures.

Posted by Aqeel Qureshi

President Obama & Sec. Clinton Speak on Human Rights for Persons with Disabilities

On the 19th anniversary of the Americans with Disabilities Act, the President and Secretary of State laud the signing of the UN Convention on the Rights of Persons with Disabilities Proclamation. July 24, 2009. (public domain)

Education is Challenger’s challenge

L.A. County’s largest detention center is failing at its basic job: rehabilitating the youths confined there.

By Mark Rosenbaum, Laura Faer and Shawna L. Parks

January 25, 2010

Challenger Memorial Youth Center in Lancaster is both Los Angeles County’s largest juvenile detention camp and its greatest failure.  It costs as much as $50,000 a year to house a youth at Challenger — about the same amount as tuition and room and board at an Ivy League university. But that’s where the comparison ends. The facility’s school is appalling, with 95% of its students scoring below proficiency on state exams.  Challenger is the target of a U.S. Department of Justice investigation into mistreatment and poor supervision of the 650 students housed at the facility’s six juvenile camps. It was cited in a 2009 county Probation Commission report as operating a “broken” school system. And this month, our coalition of nonprofit organizations filed a lawsuit asking that the county be ordered to meet at least minimum standards in educating our community’s most at-risk youth.

A young man we identify in court papers as Casey A. was kept in custody at Challenger during his high school years and given a high school diploma late last year, despite being unable to read or write. Rather than coming up with a strategy that would teach him to read, a teacher at Challenger appointed a “para-educator” to read assignments out loud to him. Knowing that Casey was illiterate, the staff fed him answers so that he could pass the required state exams.  Miguel B., another student who was at Challenger for much of the last year, was confined for more than two months in a solitary cell containing only a cot. During this time, the school provided him with two hours or less of educational instruction per day. He was also denied access to textbooks, physical education and time outdoors — all in violation of the law. On some days, he received no educational instruction at all. On other days, his instruction consisted of nothing more than copies of school materials shoved under his cell door. On those days, he never saw a teacher or had any interaction with other students.

These stories are not isolated examples. Students at the facility are routinely excluded from class without cause or proper procedure. Teachers miss class without explanation or show up late without consequences. Students have been punished simply for asking for basic educational services. Despite the high incidence of reading deficits among students housed at Challenger, the school fails to systematically screen students for reading problems, and the staff is not trained to intervene effectively when problems are identified. Those who can read often do not have access to textbooks. Students are sometimes punished by having to stand outside for hours in 100-degree heat during the school day. They are shown movies in lieu of instruction. It is commonplace at Challenger that students do not receive even the state-required minimum amount of instructional time.  Many of the kids held at the facility already face incredible challenges. Although they often have the tough demeanor that comes from growing up in tough circumstances, many of them do want to learn.  But they are at severe risk, and research has shown again and again that those who leave high school without having mastered basic reading and math skills are far more likely to commit crimes and be incarcerated as adults. More than 80% of prison inmates are high school dropouts, and a high percentage are unable to read. In California, we spend billions each year on adult prisons and incarcerate about 150,000 people.

Studies have also shown, though, that when juvenile facilities focus on rehabilitation and literacy, they can dramatically reduce recidivism. Moreover, there are proven and well-known educational strategies and methods to address the learning needs of even the most challenged youth.  Giving these kids a good education is not just good policy: It’s the law. State law mandates that juvenile detention facilities in California, including county probation camps like Challenger, exist solely to rehabilitate, not to punish. Our theory of juvenile justice is predicated on facilitating a second chance. At Challenger, by denying kids the most important tool they need to succeed, the county of Los Angeles makes virtually certain kids don’t get that chance.  It is time for the county to swiftly and comprehensively address these violations. It needs to bring in personnel and experts who can turn a dysfunctional system around and start actually educating kids in desperate need. With every day that passes, more children are needlessly lost.

Mark Rosenbaum is chief counsel at the ACLU Foundation of Southern California. Laura Faer is the directing attorney of the Children’s Rights Project at Public Counsel. Shawna L. Parks is the legal director at the Disability Rights Legal Center.

Copyright © 2010, The Los Angeles Times

Locals pitch in to help develop Web site for the disabled

By Tish Butts
Published:Saturday, January 16, 2010 2:13 AM CST

An informational database is being developed to aid thousands of Mississippians living with disabilities in finding programs that accommodate their needs.  The site is expected to start up in the spring.  The River 5 team of AmeriCorps National Civilian Community Corps worked with O’Keefe Educational Media of Gulfport to build Disability Connection, a database of almost 2,000 resources that offers services for daily living, health care, recreation, travel, support and mental wellness — as well as a social networking component for people with disabilities, AmeriCorps Community Relations Specialist Erika Roberts said.  The team worked with the directors of OEM to add contact information for other nonprofit organizations that will be made available.  Team member Jacob Dvorak, 21, of Florida, who recently found out that Attention Deficit Disorder is a disability, said he was able to contribute tools to help those who suffer from ADD.

Another team member, Summer Hasan, 20, of Texas, said people with disabilities often don’t know about programs or their availability from one county to the next. The idea is to connect them “with things they need,” she said.  The Internet resource center is designed to accommodate anyone with disabilities and allow for the addition of resources, Roberts said.  Janie O’Keefe, who founded the nonprofit organization with her husband, James O’Keefe, in 2002, set out to build the database after meeting a 35-year-old man in a wheelchair who had been homebound for 14 years.  “Many Americans are faced with disability issues within their families, friends and community,” she said.” In 2007, in Mississippi alone, an estimated 548,000 people age 5 and older were recorded as having a disability. That was 20.7 percent of the population.”  O’Keefe began her journey in 2003 by contacting the Harrison County Development Commission, Gulf Coast Convention and Visitors Bureau and Biloxi City Hall, but found that a list of activities for people with disabilities was not available. Efforts of OEM met setbacks in 2005 when Hurricane Katrina destroyed work on an educational film project, Roberts said. The O’Keefes then turned to the Internet to reach a larger audience.  While working with the team at the NCCC Southern Region Campus on Confederate Avenue in Vicksburg from Nov. 29 through mid-December, O’Keefe welcomed donations from Walmart and Ameristar Casino to help make the project possible.  Bess Averett, public relations manager for Ameristar Casino in Vicksburg, said the Washington Street business donates either service or funding to several large projects each year where they can “do the most good.”  “It’s always nice to be a part of a bigger project,” she said.

She said providing O’Keefe with lodging and meals for about 18 nights was an easy “yes” for the company founded by Craig Hart Neilsen, who was paralyzed in a car wreck in 1984 while driving from Nevada to Idaho.  He established The Craig H. Neilsen Foundation in 2003 to support research in finding a cure for spinal cord injuries and disease, as well as funding rehabilitation programs for those afflicted. Neilsen died in 2006.  O’Keefe said she has been considering working with another NCCC team in March to complete the project.  NCCC inducted 160 members ages 18-24 in September to serve 11 Southern states — West Virginia, Alabama, Georgia, North Carolina, South Carolina, Virginia, Kentucky, Louisiana, Tennessee, Florida and Mississippi.  In mid-December, the teams finished their second round of projects. They serve in recovery, disaster preparation, public safety, response, environmental conservation and education.  Other regional campuses are in Denver, Colo.; Sacramento, Calif.; Perry Point, Md.; and Vinton, Iowa.

Contact Tish Butts at tbutts@vicksburgpost.com

Simpler disability rule

New Delhi, Jan. 14: The government has decided to simplify the process of issuing disability certificates through a slew of steps that would among other things relieve disadvantaged people in rural areas of the trouble of making long, “cumbersome” trips.  The social justice ministry has decided to let doctors at primary health centres issue disability certificates to those with visible handicaps such as blindness, amputations and paralysis of limbs. At present, a person with disabilities has to travel to district headquarters to get such a certificate from a medical board comprising a civil surgeon and an expert on disability.  Ministry sources said the plan would be of great help to the country’s 2.19 crore disabled, including those with mental illnesses, who make up 2.13 per cent of India’s population. The disability certificate is crucial for a disadvantaged person as it makes him or her eligible to apply for facilities, concessions and benefits under schemes of governments or non-government organisations.

“Disabled people, especially those from rural areas, had been finding it very difficult to get a disability certificate as they have to make trips to district headquarters. It has come to our notice that many disabled people in rural areas have been deciding not to get the certificate because of the cumbersome process involved. Hence we have decided to simplify the procedure,” said an official with the social justice ministry.  But those with complicated disabilities not easily discernible and which need to be assessed scientifically will still have to get the certificate from the district medical boards.  These include non-visible locomotor disabilities, cerebral palsy, hearing impairment, low vision, mental retardation, autism and mental illnesses. “Certain disabilities like hearing problems and autism cannot be assessed by a general physician. They (people with such disabilities) will have to go and get their problems certified by doctors at higher levels,” the official said.

But even in the case of people with such non-apparent disabilities the government has decided to make the process of getting a disability certificate easier.  It has decided to fix particular days in a week or month for issuing the certificates. It has also decided to hold camps for issuing the certificates at the taluka or block level.  The government is also planning to fix a time frame for issuing the certificates once an application is submitted with the district medical board.  In case the board does not have a government psychiatrist or a clinical psychologist or a paediatrician, it will be able to use the service of a private practitioner.  The government has decided to make it the responsibility of principals/headmasters of schools to arrange for disability certificates for students with disabilities. Under the new plan, the district medical board has to visit a school for evaluation of a student’s disability on the written request of the school’s authorities.

While the government’s move has come in for praise, many NGO activists voiced fears that it could lead to “massive corruption”.

The Telegraph, Calcutta


Deaths in juvenile home natural: Delhi govt

Around 75 inmates died between 2004 and 2008 at the complex

New Delhi: The deaths of 12 inmates of a state-run juvenile home in one month were natural, the Delhi government said Wednesday in its reply to a National Human Rights Commission (NHRC) notice. According to investigating officials, poor maintenance or lack of basic amenities could be contributing factors.  According to investigating officials, poor maintenance or lack of basic amenities could be contributing factors.  The NHRC Tuesday issued a notice to Delhi Chief Secretary Rakesh Mehta asking for a detailed report into the cause of deaths of members of Asha Kiran Home and the state of affairs at the juvenile home, in north west Delhi’s Rohini area.  “The Delhi government has filed a reply to NHRC. Of the 12 inmates who died, one was under 18 years. Prima facie the cause of death appears to be natural. However, based on that we won’t close investigations. In previous reports, the home was found to lack basic requirement and had poor sanitation levels. We are going to see if the deaths had anything to do with that,” a senior official of the Delhi Commission for Protection of Child Rights (DCPCR) told IANS.

The NHRC was acting on a complaint filed by human rights activist Prabir Kumar Das who alleged that 12 mentally challenged inmates of the home had died in one month.  Media reports suggested that three of the 12 had died within 24 hours due to lack of basic facilities such as warm clothes. An earlier report by the child right’s panel in June last year had found that although sanctioned for 250 inmates, the only state-run complex for mentally challenged people in the national capital houses 750 mentally retarded men, women and children.  The children were found to be suffering from tuberculosis, seizures and skin diseases. The home lacked hygiene and proper sanitary conditions. Around 75 inmates died between 2004 and 2008 at the complex.  In many of these cases, the cause of death was epileptic seizures, which the DCPCR probe committee said could be owing to neglect of medical authorities.

The detailed report from the chief secretary sought by NHRC is due within four weeks time.

I’m blind, but there’s no need to talk to my dog

I’m utterly exhausted with people constantly asking how I became blind. Considering that I’m 42, and blind since birth, it could be imagined that by now I would be familiar with this question.  On the contrary, if anything I’m getting more impatient with the same old questions day after day. “Have you been blind all your life?” To this I always respond: “Not yet”.  “Your hearing must be so much better than mine?” Answer: “Pardon?” “That’s a lovely Labrador you have there.” Answer: “Labrador? My dog is a Shepherd.”  Not original answers, but they always make me and Moss, my black Labrador, chuckle.  It always happens when I’m trapped and unable to escape. When I’m on a bus, train or taxi. People are naturally curious; I understand this. But they can’t resist going that little bit too far if you show any glimpse of being generous with your responses.  “Couldn’t you get an operation to get your sight back?” Answer: “No! I like walking into bus stops.”  “My auntie was blind. She had to stay in bed. You’re so brave going out and about.” Staying in bed. Umm, now there’s an idea. That was one smart auntie.  “How do you find your mouth when you eat?” Answer: “In the same way you find your bum when you wipe it.”  “If I was blind I would have to kill myself.” Answer: “Why wait?”

These normal questions are the reason I’ve come up with a fantastic plan. For years, various organisations have been providing Blind Awareness Workshops. In fact, I’ve had to deliver a few. These workshops show the public how they should respond if they encounter a blind person. Topics such as, don’t go up and shout at blind people, they are not deaf.  ASK, if they want to cross the road? DON’T drag them across the road by the ears. When you are giving directions, DON’T waggle your finger in some vague direction and say: “It’s just over there next to the post office. SEE, you can’t miss it.” Wanna bet?

Many years ago I was waiting for a bus in Union Street in Glasgow, when two little old ladies decided to lift me, from behind, on to the bus. They proceeded to push, heave and shove me. Now, I know I’m not known for my speed, but I was heading in the right direction of the door under my own propulsion. You won’t be surprised to hear that they failed miserably. After all, I’m 13 stone and 6ft. To get me safely aboard they caused mayhem: pushing mothers and toddlers aside to get to their prey. The driver had to leave his cab to untangle buggies, shopping and various limbs and walking sticks.  I wonder if the ladies survived that day. I know I’m scared.

I’ve decided to call my new training course The Blind Person’s Guide to the General Public. Topics such as dealing with people who are giving directions to my dog while ignoring me. This did happen in Glasgow’s Central Station by a member of the railway police. I couldn’t believe it. Was he having a laugh? No, he really was under the misapprehension that my dog knew what he was on about. Not once did he refer to me at all. Bizarre behaviour!  My course will teach blind people how to cope when faced with this kind of attitude. When people come up and say: “You are a lovely boy” – when talking to the dog. Say, “Thank you very much but I’m spoken for.”  Another tip is always to have a pair of headphones in your pocket. It is awful to be trapped on a train with someone going through all their fears and traumas about being blind. Just say that you are going to listen to an audio book. Pop on the headphones and put the jack in your pocket. They’ll never know the difference.

When you get caught by someone asking silly questions, the answer is to turn the conversation round at the first opportunity. The one main conversation that everyone likes to talk about is themselves.  Now this doesn’t just apply to us blindies – the technique can be used by everyone. Let me give you an example. I was travelling on the Glasgow Underground. Sitting opposite was a woman who decided to interrogate me about my then German Shepherd guide dog. “What’s its name?” The following questions took that kind of line. Then she started to get a little more probing. “So how did you lose your sight?”  Now in the correct circumstance that is a perfectly reasonable question. However, not on the underground when surrounded by ear-wigging passengers. I had a number of options. One is telling her to mind her own business (or words to that effect). I took a different tack. This was the first time I had put the technique into action.  It worked a treat.

I ignored her question. Then I asked her some questions of my own, such as, “Where are you off to today?”. By the time she got off three stops later, I knew that she had just broken up with her boyfriend, she was looking for a flat and was thinking of moving south again! But she left the tube feeling happy. I hadn’t been rude, and the only thing she found out about me was the name and age of my dog.  A good result, I would say. I’m not a reporter for nothing.

Ian Hamilton reports on disability issues for BBC Scotland.