Dwarves in Philippines plan to build colony where they can live in peace

Alejandro Doron

Alejandro Doron, one of Manila’s many dwarves, hopes to escape daily harassment and ridicule by starting a dwarf-only community on a plot of land in Manila

Alejandro Doron Jr, left, hopes that the Philippines government will help with his plans to create a colony that would also become a tourist attraction. Photograph: Kate Hodal

With his jet-black hair, golden skin and hazel eyes, Alejandro Doron Jr is the sort of man who regularly stops people in their tracks. He may be good-looking, but he knows why people stare. He’s small – 117cm (3ft 10in) small, in fact.

As one of Manila’s many unanos or dwarves, Doron hopes to end the harassment he faces daily by starting the Philippines‘ very first little people colony.

The 35-year-old bartender works at Manila’s only "dwarf bar", the Hobbit House, where he and his colleagues, ranging in height from 76cm to 135cm, serve tourists Hefeweizen beer and New York ribeye steaks, as dwarf comedians and Elvis impersonators perform on stage.

Just a 10-minute drive away, in the red light district of Makati, other dwarves don gold-and-black Speedos to perform in oil wrestling matches. Still others undress for fascinated sex tourists.

While there are no official figures for the Philippines, dwarfism – of which there are more than 200 distinct varieties – is generally defined as being 147cm or shorter.

The most common condition, achondroplasia, is thought to affect around one in 25,000 people.

Manila’s community of little people are highly visible because many of them have come to the capital to find both work and each other, says Doron.

"Otherwise, they are like me: the only dwarf in their village," vulnerable to both physical and verbal abuse.

Critics have questioned whether dwarf-specific jobs such as Doron’s are exploitative, but for many little people in the Philippines, such work can be a godsend.

While Filipinos are, on average, of short stature (163cm for men and 152cm for women), a minimum height requirement of 157cm exists for many jobs.

"I’m a computer programmer by profession, but even if you have a good resumé and meet the job qualifications, [potential employers] say there’s a height restriction, so they can’t hire you," says Jonathan Cancela, 30, who, at 142cm, has worked for the past few years as an oil wrestler at the Ringside bar.

The Philippines has had a longstanding fascination with little people, popularised in the 1970s by TV shows and films on dwarf boxing, wrestling, comedy and kung fu.

Even today, if a little person is the only dwarf in the immediate family, which occurs in about 80% of cases worldwide, popular Filipino legend dictates that the mother must have been watching "dwarf TV" while she was pregnant.

Such an interest in little people means that many of them, at least in Manila, have plenty of work. Doron often dons fancy dress to play leprechauns and monsters for TV shows, children’s parties and even so-called Snow White weddings. He also recently starred as a cross-dressing, papal-robed shaman in the film Son of God.

At the three-storey squat he shares with 11 others – including his own family and that of his sister’s – Doron slowly sips a glass of cola while his partner Olivia Fernandez, 38, who is 157cm, rocks their one-year-old baby in her arms. Of their five children, two are dwarves. Fifteen-year-old Rina has taken the day off from school for fear of bullying.

"Some boys wanted to cause a rumble, so I am home," she says quietly, standing at 86cm.

"It is hard for me – people say I’m small, they shout at me. But I just go to school to learn more about life."

Fernandez says she has faced opposition from both friends and family over her relationship with Doron; and seven-year-old daughter Glysdi, also a dwarf, gets so much verbal abuse that "she is always crying".

"I told them, if people talk about you, don’t listen to what they say," says Doron, who left secondary school early due to harassment.

"But it’s hard. It’s the natural attitude of the people … I prayed that all my kids would be normal, but I have no choice – this is what God gave me."

Being free from this constant abuse, says Doron, is the reason why he and about 30 other dwarves are planning to establish a colony.

An investor has donated 16,000 sq m of land near Manila, though the fields still have to be cleared, the houses built, and the businesses started.

But money is tight, and Doron hopes that local politicians will help with funding and that the colony will one day become a tourist hotspot.

So-called dwarf towns have existed in the past – in Coney Island at the turn of the century and more recently in Kunming, China – but not everyone agrees that they help in the long run.

"The answer is not segregation," says Gary Arnold of the charity Little People of America.

"The answer is raising awareness about differences and doing all we can to promote communities that embrace and are inclusive of all differences."

Dressed in children’s jeans and a T-shirt, Doron slowly winds his way back to work through alleys crowded with caged roosters and stray dogs.

A neighbour, wiping away the afternoon’s heat with a handkerchief, cackles loudly as he passes. "Ooooh!" she laughs. "There goes the dwarf!"

Doron turns and smiles at her, then continues deliberately on his way.

The Guardian

New disability bill draws mixed response from experts, activists

As the final draft of the Rights of Persons with Disabilities Bill, 2011 was submitted to the ministry of social justice and empowerment on June 30, activists working for people with disabilities, have mixed responses about the proposed Act.

According to Bhargavi Davar, managing trustee of the city-based Bapu trust for research on mind and discourse, the bill includes a liberal definition of ‘disability’ and disability rights unlike the existing Act. However, in some ways, it is inferior to the existing one.

"The Bill lists at least 20 disabilities as illustrative of the disability experience. A significant contribution is the inclusion of a range of civil political rights, such as right to liberty, life, political participation, among others. In terms of socio economic rights, the Bill offers manifold duties of the government and new entitlements. However, the new Bill is inferior to the existing Act in the context that the existing Act do not impose a limit on legal capacity, nor does it talk about guardianship," said Davar.

The new Bill, which promises to usher in landmark clauses to promote human rights and fundamental freedoms for all Persons with Disabilities (PwDs) without discrimination, has been drafted in harmony with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). 

Among other things, the proposed law suggests setting up of a National Disability Rights Authority to formulate regulations for ‘service animal’ training facilities so as to ensure that persons with disabilities are provided suitable animals to help them.
The bill also proposes to replace the existing practice of plenary guardianship with limited guardianship, a system of joint decision-making which operates on mutual understanding and trust between the guardian and the person with disability.

The ministry of social justice and empowerment had earlier constituted a committee with members representing persons with disabilities, NGOs and experts from the disability sector, to draft a new legislation to replace the Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995.

According to Davar, though the draft bill gives the right to full legal capacity, the concept of limited guardianship takes that benefit away.

"With any kind of guardianship, limited or plenary, the exercise of right for a person with disability becomes all the more difficult. The clause on ‘limited guardianship’ will again push the people with disabilities back to colonial times, as vested interests will take advantage of the clause and take away rights otherwise granted in the new Bill," said Davar.

At the same time, Davar is not sure about the implementation of the bill in the state, where the basic PwDs are, in many cases, non-existent. "The state coordination committee does not meet regularly and the budgets of 3% provided for, under the Action Plan for disability spending under all government heads, has been unutilised. State budgets for social welfare in general has been unutilised, whereas there is a crying need for huge reform of social / disability sector," she said.

Sadhana Khati, project leader, Bapu Trust, said, "Granting full legal capacity includes an array of rights – from the right of marriage to the right to vote. Though the draft grants the right to legal capacity, it does not grant ‘absolute’ right to legal capacity."
A lawyer, part of the Human Rights Law Network (HRLN), a collective of lawyers and social activists dedicated to the use of the legal system to advance human rights in India and the sub-continent, said on condition of anonymity, "The proposed law should have expounded on the concept of limited guardianship, instead of giving it a minimal definition. What the act proposes to do, i.e., replace plenary guardianship with limited guardianship sounds like a gain; but the finer details on the latter have not been specified. What the new Bill should have done is describe the process by which persons with mental disabilities – in conflict with law or in need of care and protection – are identified as a class apart, ensuring a participatory process, as the one ensured by the provisions of the Juvenile Justice (Care and Protection of Children) Act."

Pune, Times of India

Are we creating new institutions for people with disabilities?

IRISH HOUSEWe are delighted to welcome this guest post from Noelin Fox.  Noelin is a Ph.D candidate in the Centre for Disability Law and Policy, NUI Galway.  Her research examines the right to independent living provided for in Article 19 of the UN Convention on the Rights of with Disabilities. Noelin has worked for many years in intellectual disability services’ in Ireland.

On October 20th John Moloney, Minister of State for Health officially opened ten new houses for people with intellectual disability in the ground of St Ita’s psychiatric hospital in Portrane, County Dublin.  The houses will provide accommodation to 60 people with intellectual disability who are long-term residents of St Joseph’s Intellectual Disability Services in the hospital. See the Irish Times Report here.  The need to provide more appropriate accommodation for people with intellectual disability housed in the State’s long stay psychiatric facilities has been recognized for several years by the HSE and the Department of Health and Children.  In addition the families of people living in St Ita’s have campaigned for many years for proper accommodation for their family members.  As such, this development must be welcomed as a vast improvement on the conditions which pertained in the hospital.  The development is part of a wider deinstitutionalization strategy articulated in the government’s mental health policy document Vision for Change.  The strategy aims to see an end to all of the older long-stay psychiatric hospitals in the State and their replacement by community-based alternatives for people with mental illness and people with intellectual disability.  Minister Moloney in his address stated that the work completed in St Ita’s would be replicated throughout the country.

There are some aspects of this development which are worrying.  It is widely recognized that large institutional settings represent a breach of the fundamental human rights of residents.  However, can we be sure that newer more modern buildings, which accommodate groups of people with disability, in the ground of these old institutions represent the necessary reforms?  Are the State’s obligations to promote and protect the human rights of individuals being realized in these newer settings?  Ireland has signed up to several international treaties enumerating these rights – at UN level these include the International Covenant on Economic, Social and Cultural Rights (CESCR).  Most recently Ireland has signed, but not yet ratified the UN Convention on the Rights of Persons with Disabilities – the government has signalled its intention to ratify the CRPD when new legal capacity legislation is enacted.

1. Right to Adequate Housing

In terms of human rights the right to adequate housing is recognized in the CESCR at Article 11.  This convention explicitly applies to everyone and defines the right to ‘adequate housing’ as including not just an assurance that housing will be habitable but also that people have security of tenure and that it be located so as to ensure access to employment options, health-care services, schools, child-care centres and other social facilities.  (See UN Office of the High Commissioner for Human Rights, The right to adequate housing (Art.11 (1)): 13/12/91. CESCR General comment 4. (General Comments)).  Does the new development provide security of tenure?  Does the location ensure access to community facilities?

2. Congregated Settings Report

The report of the HSE ‘Congregated Settings’ working group Time to Move on from Congregated Settings: A Strategy for Inclusion is due to be published over the coming months.  The key tasks of this group were to identify the numbers of people with intellectual disability living in congregated settings, to outline a framework to guide the transfer of people to the community based on international best practice and to identify the likely costs of this.  From the point of view of the development in Portrane and its proposed replication across the State it is significant that the report (which was due to be published at the end of 2009 and was leaked to the media in July this year) defines a congregated setting as one where ten or more people share a single living unit or where the living arrangements are campus-based. The building of accommodation in the grounds of an existing psychiatric hospital or other institution must raise questions about the level of integration possible with the local community.  Does this represent just another form of segregated housing for people with disability – albeit of a better physical standard?

3.  UN Convention on the Rights of Persons with Disabilities

Although Ireland has not yet ratified the CRPD the intention is that this will happen in the not too distant future.  Article 19 of the CRPD defines the Right to Independent Living and Inclusion in the Community.  The core elements of this are the right to choose where and with whom to live and not to be obliged to live in any particular living arrangement and the right to supports to ensure access to community.  Although the people moving to the new houses in Portrane had choice about whom among their fellow residents they wished to live with, this surely is a very limited choice.  It is questionable whether a policy of building residences to accommodate groups of people with disability in the grounds of old institutions can ensure that the States obligations under Article 19 of the CRPD will be met.  Can such arrangements ensure that people have real choice about where they live or with whom?  Are ex residents not obliged to live in the new houses built for them?  Can such housing ensure that people have access to the local community?

There is a real danger that in moving people from large institutions to alternative grouped living arrangements, especially where these are located in close proximity to existing institutions, that we will create new mini-institutions which replicate many of the features of the old, and which will have to be deconstructed in years to come.  The challenge facing us is how do we take account of the real wishes and needs of people with disability who have been institutionalized for many years and ensure that they can lead the lives of their choosing in the community.  A first step in this must be providing access to mainstream housing in the community.  One must ask why we are building more ‘special needs’ housing when there is a surplus of regular housing available in regular communities.  The provision of specialized or generic community-based supports to enable people to live in their own home will involve a re-examination of how such supports are currently configured.

Human Rights Ireland

Closure call for institutions for disabled

Fri, Jul 16, 2010

Madam, – The report by Carl O’Brien (Front page, July 12th) suggested that the main conclusion of an unpublished report by the working group established by the Health Service Executive (HSE) was calling for the closure of all institutions for people with intellectual disabilities within the next seven years because they are in breach of residents’ basic rights.  While I agree with general tenor of this article I think it is necessary to look behind the rhetoric – moving people from one setting to another is not what’s required – what is required is a complete configuration of how disability services are planned and provided.

It is wonderful your paper is in a position to give its readership the heads-up on the Review of the Congregated Settings when a Dáil question addressed to Minister of State John Moloney on June 16th was unable ascertain whether the Minister for Health had completed the review; or indeed to garner details of the report due to industrial action in the HSE. Maybe the Ministers might now wish to comment on the report as its details are now in the public domain?  The closure of institutions for people with disabilities is an assumed panacea for the complex issues facing people with disabilities in congregated settings. Just replacing such establishments with supported or independent placements in the community will not in or of  itself address the complex needs of this group in our society.  While I can accept the interpretation of the report’s contention that suggests that thousands of people in congregated settings are separated from the community and stripped of dignity, privacy and independence – people with disabilities living geographically within our society are also socially excluded and continue to be so, in a context where our Government is reluctant to ratify the Optional Protocol of the UN Convention on the Rights of Persons with Disabilities.

While the report suggests that the continued operation of these institutions is in breach of Ireland’s obligations under various United Nations conventions and that the continued operation of such establishments contradicts official Government policies, it is important to note what the official Government position now is.   In response to a parliamentary question, Minister of State John Moloney stated that no decision has been taken on the signing by Ireland of the Optional Protocol of the UN Convention on the Rights of Persons with Disabilities.  The new model of supported or assisted living in the community advocated by the report needs to reflect a way of meeting the complex health needs of people with disabilities. Additional funding will need to be made available to mainstream health and social services, as the complexity of healthcare needs of those with intellectual disabilities with will place much greater resource demands on already stretched mainstream health system,

We should learn from the UK where resettlement of people from congregated settings has been very much completed. Research shows people with intellectual disability have much greater health needs than the general population. Among other issues, people with intellectual disability experience a greater prevalence of gastrointestinal disorders, pneumonia, sensory impairments, epilepsy, dental disease and osteoporosis. The suggestion that revenue from the sale of existing institutions would help fund the move towards community-based care is clearly not a serious contention in the current property climate . The process of closing down institutions will not simply be a case of replacing one set of buildings for another and will undoubtedly need to see the development of well-researched and well-planned services which are responsive and needs-driven and not philosophy laden.

I’m not sure I would agree with a HSE official being charged with driving and implementing a seven-year programme to close down inappropriate settings, as the shocking reality is that the majority of services provided for people with disabilities have never been provided by the State. Approximately 80 per cent of all such services are provided in the private and voluntary sector – the State has historically reneged on its responsibility to this group of people. Are we to believe we can trust that State or an organ of the State to make amends and devise a much better system of service provision? Where the Government is going to find a “congregated settings fund” is a curious proposition, although a curbing of departmental entertainment, travel and subsistence budgets might be a good place to start looking for some spare cash to begin the process.

– Yours, etc,

PAUL HORAN,
Lecturer in Intellectual
Disability.
Nursing School of Nursing
Midwifery,
Trinity College,
Dublin 2.

© 2010 The Irish Times

Disability law: Hunger strike called off

After the Centre partially conceded their demands, a group of disabled people on Wednesday called off their hunger strike held to protest against their poor representation on a committee which is drafting a new law to protect their rights.  Javed Abidi, convenor of the Disabled Rights Group, said the strike had been called off after the Centre’s positive response.

A S Narayanan, secretary of the National Association of the Deaf, told The Indian Express through a translator that Gopal Reddy, personal secretary to Social Justice and Empowerment Minister Mukul Wasnik, had confirmed that six more people would be added to the committee, of whom three were disabled. This would bring the total number of disabled people on the committee to six.  Following pressure from various disabled groups, the Social Justice And Empowerment Ministry had formed a committee in April to draft a new legislation, reflecting the UN Convention on the Rights of Persons with Disabilities, to replace the Disability Act, 1995. The first meeting of the committee will be held on Thursday.

Disability activists are looking for three main changes to the Act.

VINAY SITAPATI
Indian Express

Rejig of discrimination laws should enshrine equality for all

DOMINIQUE ALLEN
May 3, 2010

The government needs to back its words on human rights with action.

THE Rudd government recently said it would review the four federal anti-discrimination laws with a view to merging  them into a single act.  The review could be the most significant aspect of the government’s new  human rights  framework – but only if the outcome is a law that will effectively tackle inequality. Australian law has prohibited discrimination for more than 30 years. These laws have eradicated the most overt forms of discrimination. Women can’t be prevented from applying for jobs based on gender. People can’t be removed from a pub because of their race. We cannot afford to be complacent; by no means do we live in an equal society.  Women’s participation in the workforce is 58.7 per cent, compared with 72.1 per cent for men, most women work part-time and many industries remain highly segregated. Race discrimination persists. We only have to think of the recent attacks on Indian students in Melbourne or the fact that indigenous people experience a standard of living well below that of the non-indigenous population. A recent ANU study found that a job applicant with a non-Anglo-Saxon sounding name will find it much more difficult to  get a job interview than an applicant with one. People with a disability face many obstacles in accessing buildings,  services and public transport.

The reason for this discrimination is dealt with case by case. There is no institution, like the ACCC or the Ombudsman, that can make sure that people are given a ”fair go” at work or school, or in the services they receive. It is up to victims to do something about discrimination.  If I am discriminated against by a potential employer because I am female and likely to have children soon, my only option, apart from trying to sort the matter out with the employer, is to lodge a complaint with the Australian Human Rights Commission. The commission will arrange a conciliation conference for the parties and we’ll try to resolve the issue. The chances are we will. We’ll spend a few hours discussing what happened and I’ll walk away with a small financial settlement in return for not going to court and keeping the matter confidential. That will resolve the issue for me, but what if there are other women in the workplace who have had a similar experience? What about other employers who are considering doing the same thing? Will my complaint deter them?

The answer is that the system can do little to help people in a similar situation to mine, or to discourage potential discriminators. If the Rudd government simply decides to combine the race, sex, disability and age discrimination acts under one umbrella act, nothing will change; Australia will continue to tackle discrimination in a piecemeal fashion. There is another option. The government could commit to actively tackling inequality and introduce the legal tools to achieve it. This is not a novel idea. Other countries have been doing it for decades. In the US, at least since the Kennedy administration, government contractors have been required to take action to ensure their workforces are  representative, or they risk being ineligible for government contracts. In Northern Ireland, specific employers have been required to achieve fair participation of the Catholic and Protestant communities in the workforce since 1989. South Africa introduced similar requirements to remedy decades of apartheid. In Britain, equality is promoted beyond employment. Public authorities have to consider the need to promote equality of opportunity based on race, gender and disability when carrying out their functions. This meant that when the Department of Health became aware that diabetes was prevalent among Britain’s Afro-Caribbean community, it made sure that its national framework for  tackling diabetes took the needs of that community into consideration. The Rudd government could also follow Victoria’s lead. Just last month, the Victorian government introduced laws that will enable the Equal Opportunity and Human Rights Commission to launch investigations into persistent or entrenched discrimination, rather than relying solely on victims to do something about it. Following an investigation, the commission will work with the organisation to resolve the issue.

The organisation may only need to change its behaviour or it may agree to something more comprehensive, such as developing an action plan to eliminate discrimination. Australian governments were once leaders in promoting equality and protecting human rights on the international stage. Let’s not forget that South Australian women were the first women worldwide to be extended the franchise as well as being allowed to stand for election. The Rudd  government recently reasserted Australia’s commitment to protecting human rights by becoming one of the first countries to sign the Convention on the Rights of Persons with Disabilities. It’s time for this government to bring that commitment to equality home by introducing laws that actively promote equality and give substance to the catch cry, a ”fair go” for all.

Dr Dominique Allen is a research fellow at the Institute of Legal Studies, Australian Catholic University.

Manmohan promises disabled-friendly laws

FIGHTING FOR THEIR RIGHTS: Physically challenged persons, under the banner of the National Platform for the Rights of the Disabled and led by CPI(M) leader Brinda Karat, march on Parliament Street in New Delhi on Tuesday to press their demands. Photo: V. Sudhersan

Prime Minister Manmohan Singh on Tuesday said the government was in favour of amending the laws, if need be, to make them more disabled-friendly. He gave this assurance to a delegation of the differently-abled persons who met him in Parliament. The delegation was led by CPI (M) MP Brinda Karat.  “The Prime Minister was extremely sympathetic towards the demands of the disabled persons and said their demands were genuine,” Ms. Karat said. Dr. Singh assured the delegation of changing the laws to make them disabled-friendly, if necessary. The Prime Minister interacted with the members of the delegations and enquired about their problems. Talking to The Hindu, Ms. Karat said this was the first time that a delegation of differently-abled persons had visited Parliament House. “It was pointed out to the Parliament staff that there was only one gate (Gate no 9) in Parliament House for the physically disabled people and this was far away from the main entrance,” Ms. Karat said. The delegation also met the Union Minister for Social Justice and Empowerment Mukul Wasnik who told them that the government was finalising a new law for the disabled that would replace the existing law.

Earlier, a large number of people with different forms of disabilities marched to Parliament House to demand a better deal. Marching under the banner, ‘National Platform for the Rights of Disabled Persons,’ the people highlighted the plight of the economically and socially disadvantaged among the disabled, the poor, and the Scheduled Castes and the Scheduled Tribes. “The basic issue is that of the approach of the government and we must request you to consider our demands not as an act of charity but as fulfilment of entitlements and rights as equal citizens of India. India is a signatory to the United Nations Convention on the Rights of the persons with Disabilities which enjoins the government to ensure minimum rights and livelihood to disabled citizens,” the marchers said in a memorandum submitted to the Prime Minister. The demands include a comprehensive social security system for all persons with disabilities and their families including the Antyodaya cards, free health care for disabled persons, amendments to the Right to Education Act to make provision for disabled teachers and professional and identification of jobs for the disabled immediately with annual special recruitment drives each year.

Besides setting up a separate Ministry for disability affairs, the memorandum also sought issuance of a universally valid identity card and replacing the current Persons with Disabilities Act (1995) in consonance with the provisions of the U.N. Convention and harmonising other laws, the disabled persons also wanted proper enumeration of the persons with disabilities. The organisations that participated in the march included the Paschimbanga Rajya Pratibandhi Samaiilani, the Differently Abled Persons Welfare Federation of Thiruvananthapuram, the Karnataka Rajya Angavikalara Mattu Palakara Okkota, the Jharkhand Vikalanga Morcha, the Tamil Nadu Association for the Rights of all types of Disabled and Caregivers and the Vibhinna Prathiba Vanthula Jakkula Vedika of Andhra Pradesh.

The Hindu

Community provides accessibility for everyone

At Waterfront Ridge in Munhall, developer Steve Chupinka’s goal was to build affordable and accessible houses. “As a real estate agent, I really saw a need for it,” said Mr. Chupinka, president of Bryler Development and K&S Real Estate. It was a need also recognized by United Cerebral Palsy / Community Living and Support Services, a nonprofit human service provider for people with disabilities in Allegheny and surrounding counties. They joined together to create a two-unit, one-level patio home that is handicapped-accessible and uses “smart home” technology. There will be an open house at 106 and 108 Waterfront Ridge Lane today from noon to 5 p.m. Later this month, four men with disabilities will move into the units. Twenty more units are to be built in the development. “This is a community where anyone can live,” Mr. Chupinka said.

he new Waterfront Ridge homes are "smart houses" that UCP/CLASS are providing for rent to men with cerebral palsy.The first two units have been specially designed to serve the needs of the men involved in the UCP/CLASS program, said Ron Ruppen, facilities coordinator for UCP Community Service Centre. Two of them are in wheelchairs and have cerebral palsy, and the other two have different levels of brain injury but are ambulatory. Smart technology includes monitors that detect water leaks and bathroom floors made of special material to prevent slipping. An intercom system links the two units, so in case of an emergency, phones or panic buttons are programmed to activate the intercom to call UCP staff members for help. Cameras will monitor the entrances so residents can see visitors on their television screens. All of the doorways are at least 36 inches wide, so wheelchairs can easily pass through. The entrance to the house does not have a step for better wheelchair movement, Mr. Ruppen said. The bathrooms are wide enough to allow for easy turning radius for a wheelchair, and the showers have roll-in access. “This home and the home next door are fully accessible, but they are residential in nature,” said Al Condeluci, CEO of UPC/CLASS. “They don’t look institutional.”

The single-floor living spaces include two bedrooms, each with their own bathroom, a large living room area, kitchen, dining area, laundry room and back porch overlooking the Monongahela River. UCP/CLASS designed its first smart home two years ago in North Versailles, Mr. Condeluci said. One of the key elements they were aiming for with the Munhall location is “visitability.” The sidewalks between the houses facilitate connections with the community, he said. The homes’ design also promotes the idea of aging in place, or creating a home that remains easy to manage and access as residents age. The four men who will live in the houses saw their newly finished homes last Thursday. The men, who are currently living at Alvern Gardens in Castle Shannon, gave input about furniture, paint colors and kitchen accessories, UCP/CLASS residential supervisor Beth Dotson said. UCP/CLASS owns the house and will provide staff support for the men, who will pay rent and utilities. The Waterfront Ridge properties will cost $135,000 to start and can run up to $200,000 depending on what technology and other amenities are included. For more information, call 724-263-6843 or go to www.brylerdevelopment.com/waterfrontridge. To get to Waterfront Ridge from Pittsburgh, take the Homestead Grays Bridge, left on Route 837, right on Whitaker Way and follow the signs.

Kaitlynn Riely can be reached at kriely@post-gazette.com or 412-263-1707.

Read more: http://www.post-gazette.com/pg/10009/1026548-30.stm#ixzz0c9EQOUQr

North Zone Consultation on New Disability Act in January

D.N.I.S. News Network, India: At the National Consultationorganised by National Centre for Promotion of Employment for DisabledPeople (N.C.P.E.D.P.) in October this year, a consensus was reached totake the demand for a new disability law forward and to the grassroots.Accordingly, it was decided that 4 Zonal Consultations would held. Thefirst of these, the North Zone Consultation, will be held in New Delhiin the later part of January. The North Zone Consultation will be heldin collaboration withAction for Ability Development and Inclusion (A.A.D.I.). It may bementioned that around 80 renowned disabled rights activists from acrossthe country attended the National Consultation on ‘The Rights ofPersons with Disabilities (Respect for Dignity, Effective Participationand Inclusive Opportunities) Act, 2010’. It was agreed that theDisability Act of 1995 was archaic and hence it was time to go in for anew comprehensive Act based on U.N.C.R.P.D. rather than going in forAmendments to the Disability Act of 1995, as suggested by the Ministryof Social Justice and Empowerment.

DNIS

Access not legally binding, feels Urban Development Joint Secretary!

D.N.I.S. News Network: A.K. Mehta, Joint Secretary, Ministryof Urban Development feels that access is not legally binding, as theDisability Act of 1995 says that ensuring access depends on ‘economiccapacity’! This shocking statement was made by Mehta in a meeting withJaved Abidi, Honorary Director, National Centre for Promotion ofEmployment for Disabled People (N.C.P.E.D.P.) on December 17.

Mehta also disclosed that the Ministry is currently studying theaccess guidelines of various countries to come out with a comprehensiveguideline for India.

D.N.I.S. had earlier carried a story on how the Ministry hadcalled for applications for conducting access audits of public placesin Delhi without fixing any technical criteria. A meeting was alsoconvened by Mehta to ‘harmonise the three guidelines currently in placefor accessibility’. Neither AccessAbility nor N.C.P.E.D.P. were invitedto this meeting. N.C.P.E.D.P. then wrote to Mehta on October 12 on thisissue and submitted a copy of the proposed revisions to the AccessGuidelines in the National Building Code. The letter was not evenacknowledged until Abidi brought this to the notice of Jaipal Reddy,Minister of Urban Development in their meeting on December 4.

DNIS

Seeking access

When it comes to the design of public structures and facilities, a high value ought to be assigned to accessibility. After all, what is the purpose of building something if significant segments of the population cannot use it?  Shopping centres learned the lesson a long time ago, by installing elevators and escalators. The fewer physical obstacles between shoppers and retailers, the better. The economic imperative drove accessibility — although, of course, accessibility is not just about economics but about the promotion of equality and fairness.  When the National Capital Commission built the York Street Steps more than a decade ago, it did think hard about questions of access. But one gets the feeling that, in the end, the overriding value behind the design was esthetic. The steps are indeed a fine piece of urban architecture, in the grand tradition of ornamental staircases.

But even in the short years since the York Street Steps were conceived, the importance of accessibility in public spaces has increased. This is due not just to the activism of disability rights groups; it’s also a reflection that we live in an aging society. It won’t be long before many a baby boomer finds the York Street Steps, all $1.7 million of them, a daunting obstacle.  For the young and able-bodied, the steps will always be a welcome link between Mackenzie Avenue and the ByWard Market. But for a growing number of people, the steps risk becoming a symbol of exclusion, even though the NCC surely did not intend them to be.

Last week, the Federal Court of Canada opened the door for a new hearing before the Canadian Human Rights Tribunal, to decide whether the steps discriminate.  The unfortunate truth is that this is one case where what’s done is done. It’s not practical to rebuild the steps, and the steepness of the grade doesn’t allow for a ramp. (Plus, there is an elevator not too far away. ) It’s not fair that disabled or elderly people don’t get to enjoy the steps, but at least the controversy has had the salutary effect of raising public awareness and, one hopes, ensuring that future structures are more accessible.


While we’re on the topic of mobility and aging, it’s interesting to note that a $400,000 seniors park has been created as part of a public-private partnership to develop the Orléans Town Centre. This new green space features a petanque pitch, outdoor chess tables, a gazebo and a sundial.  The intention may be noble, but it’s hard not to detect the outline of old clichés about “seniors.” The only things missing are piped-in show tunes from Oklahoma and shuffleboard.  Members of the demographic that a generation or two ago would have been on park benches feeding the pigeons are today on golf courses. As lifespans continue to grow, and joint replacements and cataract surgeries become routine, 80 really is the new 60. The clientele for whom the Cumberland Seniors Park was designed might not have as many free afternoons to sit in a gazebo as you might think.